The Huntington’s Disease Care, Education, and Research Center uses a multi-disciplinary approach to the treatment of patients and their families. Consistent with Georgetown Medical Center’s devotion to cura personalis, or cure of the whole person, the HDCERC aims towards cura familia, or cure of the whole family. Our services and support encompass family members and caregivers.
You and your family will benefit from our:
- Team approach. Our program includes experts across the entire spectrum of care, from neuropsychologists and genetic counselors to therapists and social workers. All of these specialists are available in our clinic and regularly consult on patient cases.
- Comprehensive treatments. Our specialists develop personalized treatment plans to manage every aspect of the disease: movement disorders, mood disorders and cognitive disorders.
- Family focus. We realize that no family can manage Huntington’s disease on its own without real social support. We are one of the only clinics that has a full-time dedicated social worker.
- Commitment to research. Our center is part of the Huntington Study Group, a collaboration of medical experts conducting research and clinical trials in the hopes of finding better treatments and ways to slow or stop the disease. Read more about our research and clinical trials here.
- Community locations. We believe it’s important to provide care at locations convenient and easily accessible to our patients. We also have offices at MedStar Montgomery Medical Center in Olney, MD, and MedStar Health in McLean, VA.
For more information, including videos from clinicians, visit the Hospital website.
Karen E. Anderson, MD
Associate Professor, Neurology and Psychiatry
Thomas Cummings Jr., MD
Assistant Professor, Psychiatry
Medical Director, Inpatient Psychiatric Unit
HDCERC Co-Clinical Director
Fahd Amjad, MD, MS
Assistant Professor, Neurology
HDCERC Co-Clinical Director
Lisa Ebb, PT, MS, NCS
Physical Therapist, Clinician IV
Karen Edick, MS Ed., CCC-SLP
Outpatient Speech Pathology Program Coordinator
Erin Whitelatch, MS, OTR/L
Occupational Therapist, Clinician III
Steven E. Lo, MD
Assistant Professor, Department of Neurology
Attending Physician, Movement Disorders Program
Fernando Pagan, MD
Associate Professor, Department of Neurology
Co-Director, Movement Disorders Program
Director, NPF Center of Excellence
Robin Kuprewicz, MA
Program Manager of Clinical Trials
Natasha Scott, BS
The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.
The Huntington's Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington's disease. For more information, please contact Chandler Swope at (202) 674-4848.
The Enroll-HD study is a global observational study for Huntington's Disease families. If interested, please contact Natasha Scott.
Huntington's Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington's disease.
Find more information about clinical care in HD here.