Huntington’s Disease Care, Education, and Research Center

brain imaging

A Huntington Disease Society of America (HDSA) Center of Excellence


The Huntington’s Disease Care, Education, and Research Center uses a multi-disciplinary approach to the treatment of patients and their families. Consistent with Georgetown University Medical Center’s devotion to cura personalis, or cure of the whole person, the HDCERC aims towards cura familia, or cure of the whole family. Our services and support encompass family members and caregivers.

Make a Gift

Give a gift online in support of the Georgetown University Huntington Care, Education, and Research Center.

logo for Huntington Disease Society of America (HDSA) Center of Excellence

You and your family will benefit from our:

  • Team approach. Our program includes experts across the entire spectrum of care, from neuropsychologists and genetic counselors to therapists and social workers. All of these specialists are available in our clinic and regularly consult on patient cases.
  • Comprehensive treatments. Our specialists develop personalized treatment plans to manage every aspect of the disease: movement disorders, mood disorders and cognitive disorders. 
  • Family focus. We realize that no family can manage Huntington’s disease on its own without real social support. We are one of the only clinics that has a full-time dedicated social worker.
  • Commitment to research. Our Center is part of the Huntington Study Group, a collaboration of medical experts conducting research and clinical trials in the hopes of finding better treatments and ways to slow or stop the disease. Read more about our research and clinical trials.
  • Community locations. We believe it’s important to provide care at locations convenient and easily accessible to our patients. We also have offices at MedStar Montgomery Medical Center in Olney, MD, and MedStar Health in McLean, VA.

For more information, including videos from clinicians, visit Huntington’s Disease Center at MedStar Georgetown University Hospital


Videos

Strategies for Managing Depression

Director Karen Anderson gives a talk on Strategies for Managing Depression at HDSA Convention 2016.

Ask Dr. Karen Anderson

Director Karen Anderson answers commonly asked questions about Huntington disease, including the benefits of participating in clinical trials. To see the questions, open in YouTube and click ‘show more’.


Contact

Hope Heller

Clinical Director of Operations, Clinical Social Worker 
Appointment line: (202) 687-1366 
Email: hope.heller@medstar.net

HDCERC Team

Karen E. Anderson, MD

Associate Professor, Neurology and Psychiatry

HDCERC Director

Dr. Anderson’s bio

Fahd Amjad, MD, MS

Assistant Professor, Neurology

HDCERC Co-Clinical Director

Dr. Amjad’s bio

Jan Blancato, PhD

Genetic Counselor, Clinical Cytogeneticist and Director of the Cytogenetics Shared Resource of the Lombardi Comprehensive Cancer

Dr. Blancato’s bio

Lisa Ebb, PT, MS, NCS

Physical Therapist, Clinician IV

Lisa’s bio

Karen Edick, MS Ed., CCC-SLP

Outpatient Speech Pathology Program Coordinator

Karen’s bio

Erin Whitelatch, MS, OTR/L

Occupational Therapist, Clinician III

Erin’s bio

Steven E. Lo, MD

Assistant Professor, Department of Neurology

Attending Physician, Movement Disorders Program

Dr. Lo’s bio

Fernando Pagan, MD

Associate Professor, Department of Neurology

Co-Director, Movement Disorders Program, Director, NPF Center of Excellence

Dr. Pagan’s bio

Robin Kuprewicz, MA

Program Manager of Clinical Trials

rk1028@georgetown.edu

Erin Koppel, BS

Research Assistant

ek875@georgetown.edu

Resources

Huntington's Disease Society of America logo

Huntington’s Disease Society of America

The HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington’s Disease through community services, education, advocacy, research and more.                                 


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Huntington Study Group

The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.


Huntington's Disease Youth Organization logo

Huntington’s Disease Youth Organization

The Huntington’s Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington’s disease. For more information, please contact Chandler Swope at  (202) 674-4848.     


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Enroll-HD

The Enroll-HD study is a global observational study for Huntington’s Disease families. If interested, please contact Erin Koppel.


HD Buzz logo

HD Buzz

Huntington’s Disease research news in simple language.


Huntington's Disease Drug Works logo

Huntington’s Disease Drug Works

Huntington’s Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington’s disease.


Help 4 HD International logo

Help 4 HD International

Incorporated and tax exempt in 2013, Help4HD’s mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD) through its multimedia communications platform.


See Clinical Care Resources for more information on Huntington’s Disease.