Huntington Disease Care, Education, and Research Center

brain imaging

A Huntington Disease Society of America (HDSA) Center of Excellence


The Huntington Disease Care, Education, and Research Center uses a multi-disciplinary approach to the treatment of patients and their families. Consistent with Georgetown University Medical Center’s devotion to cura personalis, or care of the whole person, the HD-CERC aims towards cura familia, or care of the whole family. Our services and support encompass family members and caregivers.

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logo for Huntington Disease Society of America (HDSA) Center of Excellence

You and your family will benefit from our:

  • Team approach. Our program includes experts across the entire spectrum of care, from neuropsychologists and genetic counselors to therapists and social workers. All of these specialists are available in our clinic and regularly consult on patient cases.
  • Comprehensive treatments. Our specialists develop personalized treatment plans to manage every aspect of the disease: movement disorders, mood disorders and cognitive disorders. 
  • Family focus. We realize that no family can manage Huntington’s disease on its own without real social support. We are one of the only clinics that has a full-time dedicated social worker.
  • Commitment to research. Our Center is part of the Huntington Study Group, a collaboration of medical experts conducting research and clinical trials in the hopes of finding better treatments and ways to slow or stop the disease.
  • Community locations. We believe it’s important to provide care at locations convenient and easily accessible to our patients. We also have offices at MedStar Montgomery Medical Center in Olney, MD, and MedStar Health in McLean, VA.

For more information, including videos from clinicians, visit Huntington’s Disease Center at MedStar Georgetown University Hospital

Emily Weaver, MSW, LICSW

Contact Line: 202-687-1366

HD-CERC News

August 2024 Newsletter

HD-CERC Announcements

HD-CERC Pet of the Month! – EARL GRAY

1- I started out life named “ZZ Top”- obviously someone made a mistake, and thank goodness it was changed to Earl Gray once I was rescued.

2. I love cardboard boxes.

3.  I like to chew on houseplants, the more toxic the better

4.  I am probably a Blue Russian.  

5.  I like to perch on the bed headboard and drop onto unsuspecting sleeping people.    

6.  I enjoy stealing salmon and cream cheese from bagels, butter from toast, and sometimes whipped cream.

7. I love to hang out in the bidet- always the coolest spot in the house.  

HD-CERC 2024 Community Needs Assessment:

In the effort to better support the HD community, the HD-CERC team is conducting a Community Needs Assessment. This assessment will help our team to identify patient and family needs. If you have time, we would love your feedback. Your participation is completely voluntary. This is not a part of a research study and is not approved by the IRB. 

HD-CERC Events

8/16/24 10 AM-2 PM EDT: HD-CERC/WVU In-Person Education Day

To register: HD-CERC/WVU Education Day

8/26/24 7-8 PM EDT: HD-CERC Caregiver Check-In Call

To Join Group: Fill out Google Form