For questions or assistance with resources please contact Joie Hucko at 202-687-0275.

HD CERC Resource Guide

Huntington's Disease Society of America logo

Huntington’s Disease Society of America

The HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington’s Disease through community services, education, advocacy, research and more.                                 

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Huntington Study Group

The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.

Huntington's Disease Youth Organization logo

Huntington’s Disease Youth Organization

The Huntington’s Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington’s disease. For more information, please contact

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The Enroll-HD study is a global observational study for Huntington’s Disease families. If interested, please contact Erin Koppel.

HD Buzz logo

HD Buzz

Huntington’s Disease research news in simple language.

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Help 4 HD International

Incorporated and tax exempt in 2013, Help4HD’s mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD) through its multimedia communications platform.

HD Reach

Founded as a nonprofit in 2009, HD Reach provides connections to medical providers, referrals to local services, care management, family support, education, and anonymous testing.

See Clinical Care Resources for more information on Huntington’s Disease.