For questions or assistance with resources please contact Joie Hucko at 202-687-0275.
Huntington’s Disease Society of America
The HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington’s Disease through community services, education, advocacy, research and more.
The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.
Huntington’s Disease Youth Organization
The Huntington’s Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington’s disease. For more information, please contact email@example.com
The Enroll-HD study is a global observational study for Huntington’s Disease families. If interested, please contact Erin Koppel.
Huntington’s Disease research news in simple language.
Incorporated and tax exempt in 2013, Help4HD’s mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD) through its multimedia communications platform.
Founded as a nonprofit in 2009, HD Reach provides connections to medical providers, referrals to local services, care management, family support, education, and anonymous testing.
See Clinical Care Resources for more information on Huntington’s Disease.