Huntington's Disease Care Education and Research Center

A Huntington Disease Society of America (HDSA) Center of Excellence

HDCERC Group Photo

 

General Information: 

The Huntington’s Disease Care, Education, and Research Center uses a multi-disciplinary approach to the treatment of patients and their families. Consistent with Georgetown Medical Center’s devotion to cura personalis, or cure of the whole person, the HDCERC aims towards cura familia, or cure of the whole family. Our services and support encompass family members and caregivers.

You and your family will benefit from our:

  • Team approach. Our program includes experts across the entire spectrum of care, from neuropsychologists and genetic counselors to therapists and social workers. All of these specialists are available in our clinic and regularly consult on patient cases.
  • Comprehensive treatments. Our specialists develop personalized treatment plans to manage every aspect of the disease: movement disorders, mood disorders and cognitive disorders. 
  • Family focus. We realize that no family can manage Huntington’s disease on its own without real social support. We are one of the only clinics that has a full-time dedicated social worker.
  • Commitment to research. Our center is part of the Huntington Study Group, a collaboration of medical experts conducting research and clinical trials in the hopes of finding better treatments and ways to slow or stop the disease. Read more about our research and clinical trials here.
  • Community locations. We believe it’s important to provide care at locations convenient and easily accessible to our patients. We also have offices at MedStar Montgomery Medical Center in Olney, MD, and MedStar Health in McLean, VA.

For more information, including videos from clinicians, visit the Hospital website


Contact name: 

Hope Heller 
Clinical Director of Operations, Clinical Social Worker 
Appointment line: (202) 444-0816 or: (202) 444-0809 
Email: hope.heller@medstar.net

 


HDCERC Team

Karen Anderson, MDKaren E. Anderson, MD 
Associate Professor, Neurology and Psychiatry
HDCERC Director

HDCERC: Ask Dr. Karen Anderson

 

 


Thomas Cummings, Jr, MD

Thomas Cummings Jr., MD
Assistant Professor, Psychiatry
Medical Director, Inpatient Psychiatric Unit
HDCERC Co-Clinical Director

 

 


Fahd Amjad, MD

Fahd Amjad, MD, MS
Assistant Professor, Neurology
HDCERC Co-Clinical Director

 

 


Jan Blancato, PhD

Genetic Counselor, Clinical Cytogeneticist and Director of the Cytogenetics Shared Resource of the Lombardi Comprehensive Cancer

 

 

 


Lisa Ebb, PT

Lisa Ebb, PT, MS, NCS
Physical Therapist, Clinician IV

 

 

 


Karen Edick, SLP

Karen Edick, MS Ed., CCC-SLP 
Outpatient Speech Pathology Program Coordinator

 

 

 


Erin Whitelatch, MS, OTR/L

Erin Whitelatch, MS, OTR/L 
Occupational Therapist, Clinician III

 

 

 


Steven E. Lo, MD

Steven E. Lo, MD
Assistant Professor, Department of Neurology
Attending Physician, Movement Disorders Program

 

 

 


Fernando Pagan, MD

Fernando Pagan, MD
Associate Professor, Department of Neurology
Co-Director, Movement Disorders Program
Director, NPF Center of Excellence

 

 


Jennifer Purks, BS

Jennifer Purks, BS
Program Manager of Clinical Trials

 

 


Natasha Scott, BS
Research Assistant

 

 

 

 

 


Kayla Schmittau
Undergraduate Research Assistant 

 

 

 

 


Kristen Watkins
Undergraduate Research Assistant

 

 

 

 


Resources

Huntington's Disease Society of America

Huntington's Disease Society of AmericaThe HDSA is a non-profit organization dedicated to improving the lives of everyone affected by Huntington's Disease through community services, education, advocacy, research and more.                                 

Huntington Study Group

Huntington Study Group

The HDCERC is also a member of the Huntington Study Group, a non-profit that partners with various organizations and offers clinical trials seeking to find the best available treatment for HD.

 

Huntington's Disease Youth Organization

The Huntington's Disease Youth Organization is a non-profit voluntary organization that provides appropriate information and education, along with support for young people impacted by Huntington's disease. For more information, please contact Chandler Swope at  (202) 674-4848.                                                                                  

Enroll-HD

Enroll-HD

The Enroll-HD study is a global observational study for Huntington's Disease families.  If interested, please contact Natasha Scott.

 

HD Buzz

HD Buzz Huntington's Disease research news in simple language.

 

 

Huntington's Disease Drug Works

Huntington's Disease Drug Works (HDDW) founded by LaVonne and Nathan Goodman in 2004 has evolved over the years. At present the focus is providing information on present treatment options for Huntington's disease.

Help 4 HD International

Incorporated and tax exempt in 2013, Help4HD's mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington's disease (JHD) through its multimedia communications platform.

 

Find more information about clinical care in HD here.